HHT UK patient support
Are you the 1 in 5,000?
Hereditary
Hemorrhagic
Telangiectasia
 hht bandsGet an awareness band in our awareness shop. |  BIG FUN RUN |  HOPECan you help Hope on his adventure? Order your own Hope the HHT awareness teddy take a photo of where he travels and either upload to one of our social network sites or email to us. |
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 family meetingHHT Family meeting took place in April at Hammersmith Hospital. |  balloon awareness |  friendly meets |
 oxygen trainFind out more about how our bodies get oxygen. |  awareness leaflet.jpgWhere would you want to place this poster? |  HHT Uk FriendsSome of the people you can chat with on facebook group. |
 Cure HHT Coxall StoryFind this story and many more at cure HHT. |  Awareness t-shirts and hoodies.jpgVisit our shop and get a great personal awareness items. |
Hereditary hemorrhagic telangiectasia affects around 1 in 5,000 people. It is a genetic condition, with affects can be mild to severe even life threatening. No two people who have the condition are affected the same. Are you? could you or someone you love be that 1 in 5,000? If so then we are here to help.
90-95% of people with HHT have nose bleeds.
90-95% develop telangiectasia (red or purple marks on skin).
20-25% develop gastric or intestinal bleeding but not many before age 50.
50% have lung AVMs.
5-20% have at lest one brain AVM.
Liver AVMs are common but only about 10% cause symptoms.
Abnormal blood vessels in liver are common but mostly cause no symptoms.