Are you the 1 in 5,000?
Hereditary hemorrhagic telangiectasia affects around 1 in 5,000 people. It is a genetic condition, with affects can be mild to severe even life threatening. No two people who have the condition are affected the same. Are you? could you or someone you love be that 1 in 5,000? If so then we are here to help.
90-95% of people with HHT have nose bleeds.
90-95% develop telangiectasia (red or purple marks on skin).
20-25% develop gastric or intestinal bleeding but not many before age 50.
50% have lung AVMs.
5-20% have at lest one brain AVM.
Liver AVMs are common but only about 10% cause symptoms.
Abnormal blood vessels in liver are common but mostly cause no symptoms.