Are you the 1 in 5,000? 

                                Hereditary

                                Hemorrhagic

                                Telangiectasia 

hht bands

hht bands

Get an awareness band in our awareness shop.

BIG FUN RUN

BIG FUN RUN

HOPE

HOPE

Can you help Hope on his adventure? Order your own Hope the HHT awareness teddy take a photo of where he travels and either upload to one of our social network sites or email to us.

family meeting

family meeting

HHT Family meeting took place in April at Hammersmith Hospital.

balloon awareness

balloon awareness

friendly meets

friendly meets

oxygen train

oxygen train

Find out more about how our bodies get oxygen.

awareness leaflet.jpg

awareness leaflet.jpg

Where would you want to place this poster?

HHT Uk Friends

HHT Uk Friends

Some of the people you can chat with on facebook group.

Cure HHT Coxall Story

Cure HHT Coxall Story

Find this story and many more at cure HHT.

Awareness t-shirts and hoodies.jpg

Awareness t-shirts and hoodies.jpg

Visit our shop and get a great personal awareness items.

Hereditary hemorrhagic telangiectasia affects around 1 in 5,000 people. It is a genetic condition, with affects can be mild to severe even life threatening. No two people who have the condition are affected the same. Are you? could you or someone you love be that 1 in 5,000? If so then we are here to help.

90-95% of people with HHT have nose bleeds.

90-95% develop telangiectasia (red or purple marks on skin).

    20-25% develop gastric or intestinal bleeding but not many before age 50.

50% have lung AVMs.

5-20% have at lest one brain AVM.

Liver AVMs are common but only about 10% cause symptoms.

Abnormal blood vessels in liver are common but mostly cause no symptoms.

 

 

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